LIVESTRONG:

And in June 2013 we are back in the revolving door of doctors, this time for my heart. So the focus has shifted, BUT... I continue to THANK YOU for your prayers, love & support. I receive them with open & loving arms. My wish is that I will gain strength from you, will provide strength to others & will help to strip away the fears we each experience.


LIVESTRONG: I am strong. I am loved. I am healthy. WE WILL WIN!

Have you or your loved one had their annual mammogram? PLEASE, don't put it off. Speaking from experience, I highly recommend monthly self exam as well.

WARNING:
Contents may be uplifting, sad, funny, scary, downright depressing ~ THAT IS CANCER .... at it's best, at its worst.

PLEASE ~ Feel free to share this blog with anyone who is interested to learn about my journey. While I welcome their support, I hope that by sharing this experience freely to the universe I may help to support others by breaking down some of the barriers and fear associated with breast cancer and the treatment.

Thursday, June 11, 2015

Affordable Breast Cancer Treatment -- What A Thought!

Hey everyone,

My dear friend, Kate Farrell, PhD, started a new business, Paradigm Shift Therapeutics. Their mission is to develop an affordable breast cancer therapy. She is quite an amazing woman and has entered a contest to win a commercial for their company at the Superbowl 2016.  

The contest is for small business owners and the winner is the business that gets the most votes.  Please forward this to friends, family, coworkers, people you know, people you don't know, anyone with a computer for that matter!  This will help support their mission.  You do not have to register or sign up for anything-just click the link and pass it on.  

As Kate says, and I agree, "Thank you from the bottom of my heart"
Vote for Paradigm Shift Therapeutics at:


Paradigm Shift Therapeutics, LLC could win a commercial that millions of people will see.And you can vote every 24 hours. I already did, and will again, and again, and again. Won't you too?



This business is all about affordable care for cancer treatment!
 




Vote for Paradigm Shift Therapeutics, LLC


Life is Good...

Debbie... aka the cancer SURVIVOR, 
AND now the Cardiomyopathy warrior!!!
• I AM STRONG • I AM HEALTHY • I AM LOVED •

THANKS for visiting! I look forward to your comments.



Sunday, May 17, 2015

Four Years Ago

It was a mere four years ago today that I went through my final chemotherapy treatment, May 17th, 2011. 

Wow, when I glance back at that post, I look better than I remember, and probably better than I am feeling then.

So that well known fifth year mark is within my grasp and feeling good. That's not to say I will be out of the woods, or that I can rest on my laurels. Not a day goes by that I am not thankful for these past four years, and any more that I am blessed with. It is the little things that give me joy, and frighten me. But it will be a feeling of accomplishment to get to the five year mark.

The frightening things, like in the breast biopsy I went through recently after a bit of precaution on my surgeon's and radiologists part, and mine as well. They do want to do another ultrasound in four months; and hopefully all is well when that time comes.

The joy in spending time with family and friends; especially my three adorable grandchildren. We've started having Gaige over for sleepovers and the most recent was two nights ago. A fun time shopping, making pizza, sleeping on the airbed and helping with chores was had by all. It was the first time it was just he and Grammie, which made it even more special. He gave me one of his special Lego Chimas to keep me company until Papa returned home today. 

Shaping the pizza dough can be lots of fun. Did you know it is real "squishy",  according to Gaige.
 
And recently I took Nico to the Tractor Museum in Woodland to check out all the tractors. It was me who did the sleep over there in Davis to give me some time to also hold little sweet Madeleine. Not to mention a fun morning with my daughter and both the grankids at the Davis Farmer's Market and the Whole Earth Festival at UC Davis campus. It was another fun and rewarding weekend with my grandkids.
Nico loved the big tractors & the little ones, too.

Maddie, at 9 months, already has six teeth and is walking across the room.


But cancer brings much sadness from time to time, as well. And those sad moments when we lose such a precious person to this terrible disease, as has happened again just recently, reminds us all of our mortality, and just how precious life is. And I believe that it resonates even stronger in those of us who have had cancer, or are currently fighting the disease with all their might. I know a lot of people who have first hand experience with this disease; either they themselves, or a loved one. The ups and downs are monstrous and really take a toll on self and loved ones. 

I try to follow the latest research and findings in this arena. But often it is hard to do, and sometimes I want to be the ostrich with my head in the sand. But then I remind myself of these three loves in my life, not to mention the rest of my family, and some very dear friends, and I do as I've mentioned over and over again -- take it one day at a time.

Here's to living life to the fullest.

Life is Good...

Debbie... aka the cancer SURVIVOR, 
AND now the Cardiomyopathy warrior!!!
• I AM STRONG • I AM HEALTHY • I AM LOVED •

THANKS for visiting! I look forward to your comments.




Monday, May 11, 2015

Mammograms are Not the End All, Be All

I came across the reminder notice from my oncology center that my Mammogram was due in January. Been there, done that. So that was good. Results great! Time to shred the document.

But as I scanned it quickly to determine shredding was warranted, I realized just how appropriate the words were. The words that said Mammography was not "everything" (my words), that annual exam, monthly self exam, were also very important. Oh how true this all is. Especially in light of a week ago.

I went in for my scheduled annual gynecological exam. During the breast exam, the Nurse Practitioner commented about one of the scar areas from my lumpectomy. This area always feels very lumpy bumpy to me and there isn't much breast tissue there anymore from the surgery. So it is very hard for me to know what to look for in that spot, or worry that something doesn't feel right. None of it feels right. The NP thought one of the spots seemed a little larger, and I agreed. So she recommended I see my surgeon for a second look, as her notes from last year gave her reason for concern. Of course my first thought, was, "Oh shit, here it comes!!! I'm nearly 5 years clean, and my world is gonna be turned upside down again." I mean, how can one not go there in their head after cancer. Even the most positive person gives pause to moments like these. Trust me, I am speaking from the heart here.

I was able to get in the next day, Tuesday; not to the surgeon as he was out at a conference, but to another Oncologist in the office I have seen for other cancer related issues and really like, Dr. Amy Shaw. Dr. Shaw also felt that this was somewhat enlarged from past records but that it was most likely a fatty necrosis and 99% nothing to worry about. This is typically fat tissue that occurs at an injury site or after surgery. She felt an ultrasound would help us to know more and decide for sure. Luckily, I was able to pop downstairs for the ultrasound right then and there. The radiologist concurred that it was most likely a fatty necrosis but sent me back upstairs to consult with Dr. Shaw.

I was having a bit of fun by now. The office normally does tumor boards on that afternoon and since the surgeons were away on conference, it was a quiet day. Dr. Shaw invited me back into her office and showed me several past mammogram films, including the ones with full blown cancer. It was very interesting to view all of these while we waited for the radiologist to consult with her so we could make a plan of attack. I mean... I had nothing better to do and wanted to get to the bottom of this as quickly as possible.

By the time she had heard from the radiologist, I had decided a biopsy would be my first choice of next steps. And when they said we could wait 3 months and recheck as the chance of cancer was slim, or biopsy it; my reply was a resounding BIOPSY, please. Especially when blood was detected just above the area. Cancer usually has blood feeding to it, and the purpose of the ultrasound would be to check for this.

After a few visits upstairs, downstairs, ultrasound, examinations, we sat down and talked. And then I headed back downstairs to schedule the ultrasound-guided biopsy. You see, the blood near the questionable spot was most likely a nearby vein, but biopsy would rule out cancer for sure, or not.

And low and behold, they had a cancellation the following day, Wednesday at 12:45pm. So now we are 3 days into this saga, but everything is moving quickly and everyone is being very responsive, and assuring me that "this is probably nothing to worry about". Why did it not move like this when I did have cancer? It is all water under the bridge, now; but...

The ultrasound-guided biopsy went well. I'm not very squeamish about these things anymore, and found it all interesting. I did have an ultrasound guided biopsy before cancer was diagnosed, but don't remember it being quite like this. But then a lot of time has passed since then, thank goodness. It was January 2011, so just over 4 years ago. Anyway, all went well! It took about an hour. They located the spot with Ultrasound (US), numbed me and then numbed deeper. Then they did an US picture right before and after each of the 6 samples and placed a tiny metal clip in the sight so it can be identified and found easily in future US and mammos. The actual sample, which is the part that seems a bit different, is taken through a needle, but is almost like a little gun. Not in appearance, but in how it acts. It makes a snap sound as it shoots in and out in nanno seconds all while grabbing a bit of the suspect breast tissue. I went home with an ice pack tucked into my bra, some steri-strips and bandaging. I was able to make a quick Costco trip in prep for a fun girls dyeing weekend (as in dyeing fiber) should all be well in the breast. If not, I guess I would have cancelled and gone home and cried a ton.



So by now you know the good news. Thursday afternoon I got the call and that everything is benign - NO CANCER. I am fine. Doing the happy dance for sure. But that week had been a bit on edge for Mark and I and the girls. I kept it all to myself otherwise, as it all happened so very very fast and they said from the get go 99% no problem. Thank the Lord!

So on Friday morning I headed out for a fun fiber weekend with some girlfriends very relieved.



But the reminder of how it can turn out and how cancer is like Russian Roulette always lurks out there somewhere. Cancer does not discriminate and hits the least suspected. And some close and dear to Mark and I know this all too well as we lost a sweet angel right around this same time to a short 30-month fight against breast cancer. She is a dear friends sister and a local Glen Ellen "boys" wife - Molly Cahill Singleton. A sweet guy that Mark helped to train as a firefighter, and a loving companion to his beautiful young wife. And then a few days later I learned of a sweet friends husband losing his battle to kidney cancer Curtis Mattison - A Veteran serving our country who had been fighting the VA to acknowledge his claim and provide his VA benefits; a father of middle school triplets, another child, and a blended family of other children as well. I mean, how do we make reason of all this. We don't. We offer our help and sympathies, and if you are like me, you cry A LOT! And wonder when and where we will find an end to this evil thing called cancer.

And then a week later, we go one with our lives. We put a big smile on our faces and thank some higher being above for three angelic faces I am blessed to call my grandchildren. So I spent a lovely Mother's Day weekend with some very special little humans, and their parents, of course!

LIFE IS GOOD!

Goofy Grammie with Nico, Madeleine and Gaige -- the loves of my life.



The moral of the story is that you cannot depend on mammograms alone. I just had mine in January. When in question, take it the next step. Better to be safe that sorry. Mind you, I haven't seen the bills for this yet, but I would not have made any other choices along the way regardless.



Life is Good...

Debbie... aka the cancer SURVIVOR, 
AND now the Cardiomyopathy warrior!!!
• I AM STRONG • I AM HEALTHY • I AM LOVED •

THANKS for visiting! I look forward to your comments.





Sunday, May 10, 2015

Another "Best"

Thank You Healthline. For the 4th year this Blog was again voted one of The Best Breast Cancer Blogs of 2015.
 
I just say it like it happens, or how I feel. And it doesn't seem to be over yet. I mean, the cancer, SO FAR, is in remission and I am approaching the wonderful FIVE YEAR mark next year. But the side effects of the chemo continue. Damn Cancer! Although even that seems to have improved considerably over the last year.

As Healthline honors my Blog, Deb's Breast Cancer Journey , they say,

Deb’s Breast Cancer Journey

It’s a troubling reality for many breast cancer patients: Even after successful treatment, more and seemingly unrelated health problems develop. Deb's Breast Cancer Journey blog’s subtitle, “My Journey Past Breast Cancer and into Cardiomyopathy,” represents that challenging layer in Debbie Emery’s story.

But this indomitable Californian recognizes what her blog posts do for her and for those who read them. She writes, “My wish is that I will gain strength from you, will provide strength to others, and will help to strip away the fears we each experience.”
Please do check out the other several Blogs recognized by Healthline. There are some truly amazing stories, and some truly amazing people out there telling these stories.

Thank you, Healthline, for this honor once again.

Life is Good...

Debbie... aka the cancer SURVIVOR, 
AND now the Cardiomyopathy warrior!!!
LIVESTRONG

• I AM STRONG • I AM HEALTHY • I AM LOVED •
THANKS for visiting! Comments are good. I look forward to your comment.





Monday, April 20, 2015

Another Angel to Watch Over Us...

An angel arrived in Heaven this morning, Molly Cahill.  Can't even imagine how this can be true, but it is. Bless your sweet soul. You are out of pain and flying free. I pray for your husband, brother, and the rest of the family. What more can I say? Rest in peace, sweet girl.

Tuesday, March 24, 2015

That's Absurd -- I Can't Access Data From My Implanted Defibrillator

You've heard me say this before, "Why don't I have immediate access to the wealth of data that my ICD generates, and in a timely manner????" Well, just change a few details here in this article from , like the name, dates, diagnosis, and most everything else is spot on. Well, not the part about buying the gadget on Ebay and learning how to program and collect the data myself. But Mr. Campos makes an excellent point, and describes it all so accurately. 
 

The Heart of the Matter

I can’t access the data generated by my implanted defibrillator. That’s absurd.



Campos’ devices.

Campos’ devices.

Photo by Gilles Frydman

As Mr. Campos states, 
"In addition to delivering electricity to the heart, the ICD also collects large amounts of data about itself and a patient’s clinical status. The data is momentarily kept in the device’s memory before being transmitted wirelessly to a bedside monitor. From there, it is sent via telephone lines to the device manufacturer for evaluation. This process, known as remote monitoring, happens automatically in the background, usually while the patient sleeps.



And I mean large amounts of data, such as how active I am (can't fudge what I tell the doc here), how much fluid I'm retaining, and so much about my heart, it's activities and irregularities, on a graph showing the exact dates and such. Learning this three to four months after the fact doesn't really give me any opportunity to react to it, or track what or why it is happening. Instead, I sit there in the cardiologists office and go, "Hmmm, what date was that again? Let me pull up my calendar and see what I was doing that day." If I've even logged anything down if it was a routine day with no appointments.

So let's make some noise about this. Tell your doctor about your concerns. Hopefully, in time, we will have continuous access to this information through an online website, or phone App, much like a patient with diabetes who has immediate access to their glucose levels so they can react accordingly with life saving measures.

Thank you Hugo Campos for this well written and informative article.

On Thursday, March 26, Future Tense—a partnership of Slate, New America, and Arizona State University—will hold an event on medical device security and privacy at the New America office in Washington, D.C. For more information and to RSVP, visit the New America website.


Life is Good...

Debbie... aka the cancer SURVIVOR, 
AND now the Cardiomyopathy warrior!!!
• I AM STRONG • I AM HEALTHY • I AM LOVED •

THANKS for visiting! I look forward to your comments.

Tuesday, March 17, 2015

Breast Cancer Tattoos ~ Do You Have One?

As a "Best of" blog, as voted by Healthline, I'm occasionally approached asking my help in spreading the word about breast cancer related topics. And this is one I thought would be fun to share, even though I don't have any tattoos. But heck, maybe it's time to consider one of these. (My daughters are probably frowning if/as they read this). See below...


From: Nicole Lascurain 
Subject: Inspiring others with breast cancer
Date: March 17, 2015 11:20:43 AM PDT

Hi Debbie,

Getting a breast cancer tattoo—whether it’s for you or in honor of someone you love—is a way to show solidarity in the face of this disease.

As Healthline named My Journey Past Breast Cancer one of our Best Blogs of 2014, I think you and your followers might be interested in submitting photos of their breast cancer-inspired tattoos to add to this beautiful collection up on the Healthline site: http://www.healthline.com/health-slideshow/breast-cancer-tattoos#2

We’re currently accepting new submissions, and I’d love it if you took a look at the slideshow, then share the above link to the submission guidelines across your social media or website! All people have to do is send in a clear photo of their tattoo + short description, with the subject “My breast cancer tattoo,” to nlascurain@healthline.com — that’s me! We’ll then feature them on the site, and help unite others who are living through breast cancer.

Let me know if this is something you’d be interested in, Debbie!   

Kindest Regards,

Nicole Lascurain • Assistant Marketing ManagerHealthline • The Power of Intelligent Health

660 Third Street, San Francisco, CA 94107www.healthline.com  | @Healthline  | @HealthlineCorp

For those of you with BC tattoos, or considering one, I hope you find this interesting. Let me know if you do post your tattoo on their site. I'd love to see it.



Life is Good...

Debbie... aka the cancer SURVIVOR, 
AND now the Cardiomyopathy warrior!!!
• I AM STRONG • I AM HEALTHY • I AM LOVED •

THANKS for visiting! I look forward to your comments.

Wednesday, March 4, 2015

Who has not been stung by cancer?


Ken Burns takes on Cancer


Who has not been stung, in one way or another, by cancer?
The statistics cited by PBS's Sharon Rockefeller are staggering: In our lifetime, she says, one in two men, one in three women, and one in 300 children will get some form of cancer. She was one of them; Rockefeller is a colon cancer survivor. So when she read Siddhartha Mukherjee's book The Emperor of all Maladies: A Biography of Cancer, she was determined to make it into a film
So she turned to PBS's premiere filmmaker, Ken Burns — whose mother died of breast cancer when he was eleven — to shepherd the project. The result is a three part, six-hours series arriving on March 30 narrated by Edward Herrmann, who died of brain cancer shortly after completing work on the film.
"He felt it was appropriate that it was going to be his final project," says Barak Goodman, who produced and directed the film. ."He did an absolutely magnificent job. I can't tell you how hard he pushed to get this done and get it right."
Tune into KQED the evening of March 30th to catch this program.



Life is Good...

Debbie... aka the cancer SURVIVOR, 
AND now the Cardiomyopathy warrior!!!
• I AM STRONG • I AM HEALTHY • I AM LOVED •

THANKS for visiting! I look forward to your comments.