LIVESTRONG:

What started as IDC (Infiltrating Ductal Carcinoma) in 2011, then turned into CHF (Congestive Heart Failure) in 2013, probably partially caused by chemotherapy along with a genetic pre-disposition. Here we are now in March 2016 and I am newly diagnosed with Stage IV breast cancer in the left breast and liver (LMBC - liver metastasized breast cancer).


So the focus has shifted yet again, BUT... I continue to THANK YOU for your prayers, love & support. I receive them with open & loving arms. My wish is that I will gain strength from you, will provide helpful information and strength to others & will help to strip away the fears we each experience.


I am strong. I am loved. I am healthy. I WILL SURVIVE!

Have you or your loved one had their annual mammogram? PLEASE, don't put it off. Speaking from experience, I highly recommend monthly self exam as well. And if you are now cancer free of breast cancer, do everything you can to insist that your doctors follow up with an occasional PET Scan and labs for tumor markers.

WARNING:
Contents may be uplifting, sad, funny, scary, downright depressing ~ THAT IS CANCER .... at it's best, at its worst.

PLEASE ~ Feel free to share this blog with anyone who is interested to learn about my journey. While I welcome their support, I hope that by sharing this experience freely to the universe I may help to support others by breaking down some of the barriers and fear associated with breast cancer and the treatment.

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Thursday, September 27, 2012

Breast Cancer Survivorship & Loads of Local Support Options

You may recall a couple of earlier posts this year on Dr. Amy Shaw, who specializes in breast cancer survivorship. Well, today I met with Dr. Shaw again. This time it was at the encouragement of Dr. Ian Anderson, my Oncologist. You see, I've been experiencing quite a bit of bone and hip pain since starting the "five-year" pill so often recommended after breast cancer treatment. This pill is to help prevent, or reduce, the possibility of recurrence of the cancer.

Well, it was a very positive appointment, which gave me a bit of levity and put a smile on my face.

Dr. Shaw asked questions about my pain, when I had it, where it was being felt. Answers are: mainly in my hip, outer upper thigh area. Rarely radiates down the leg a bit, usually during long walks, or standing, lasts throughout the day after these activities and interrupts sleep. Often requiring some pain meds.

From the questions and answers, and the range of motion tests she performed on me, she had this diagnosis and plan for healing --

Physical Therapy! 
  • My hips are fine (stop worrying you will need a hip replacement someday).
  • Pain is not from the medication, which normally causes intense elbow pain, or hand and feet pain or numbness. 
  • She cancelled the Bone Density Test as she felt I did not need more radiation in just one year and that there was no need for it at this point in time.
  • She said I had a very good range of motion.
  • And she complimented me on my new Easy Spirit shoes. (A girl needs a compliment from time to time). :-)
So I am continuing my Exemestane daily, which actually seems to give me less pain than the Letrozole (if any, now, after learning more at this appointment). I will continue my walking and keeping up the exercise.

While there, we talked about some of the programs posted on the bulletin board of the exam room. I mentioned how I seem to be growing my circle of cancer friends, much to my dismay. She mentioned how breast cancer affects 1 in 8 women during their lifetime. So I asked about the Wednesday Education & Empowerment program on Chemo Brain.



Then I noticed the flyer on the Second Annual Cancer Journeyealth Nuturing Ourselves, Loving Ourselves program. One which I saw last year but was unable to attend because Gaige M. Emery entered our lives that day. It is a one-day community event dedicated to providing those touched by cancer and their caregivers with conversations, information and nurturing experiences that complement the healing of body, mind and spirit. Looks very informative. Hope I can make it this time.



And lastly I made note of the monthly Breast Cancer Support Group program.



Then Dr. Shaw looked at me seriously and asked, "Do you know anyone without cancer?" I chuckled out loud and smiled broadly. Such a funny question but so appropriate these days. Click on the poster below for the correct link. The one listed on the poster is incorrect.

The Cancer Prevention Study-3 (CPS-3) is helping to create a world with less cancer... and more birthdays. This is a grassroots effort where local communities from across the country can support cancer research not just through fundraising efforts, but also by participating actively in this historic research study.

 


Well, that's enough information to share for now.




LIFE IS GOOD

Debbie... aka the cancer warrior ... AND SURVIVOR!!!

LIVESTRONG
• I AM STRONG • I AM HEALTHY • I AM LOVED •

Wednesday, September 19, 2012

One Year Down.... MANY MORE TO GO!

I am coming up on my first annual checkup after all my treatment. Those dates never leave you, diagnosed 1/10/11, Chemo ended 5/17/11, partial mastectomy 6/24/11, last rads 9/19/11. They stick in your head forever. How we count the days, and try not to count the days.

I see my Oncologist on October 16th, and will have a bone density scan in the next few weeks before then. I've had my blood work completed already and daughter NP tells me it all looks good. Thyroid is a little low, but my PCP suspected that so I had it run at the same time.

Since my Deductible is so darn high, I get these tests done under "private pay", which means they quote me about half the price of what it is when insurance pays, and I pay cash right then and there when I have the appointment. My plan is to not meet the $7,500 deductible this year, and I am nowhere near that. So to do it this way works best for now. I'll need to re-evaluate once January 1, 2013 rolls around. This lab work ran me $99.00. If I ran it through insurance, it would be about twice that and i would still be paying out of pocket. Who knows what the bone density scan will cost, but with all the hip pain I have since starting the 5-year pill Exemestrane, I think it is important to follow up with. Especially since the chemo I had was known to be hard on bones.

BUT HECK, I've almost got one year behind me of those five years needed for the Exemestrane. YIPPEE!!

So somewhere in all this, Jennifer (mentioned in my previous post) and I (and so many others like us) go on with our lives, try to get back to something normal, and pretend like nothing happened. Until that call comes with the reminder for the next followup appointment, or blood work, or mammogram, or bone density scan. I don't think others who have escaped cancer realize that just because we are past our treatment, we may not be back to the bubbly old self, taking days for granted self. There is still the underlying, "what if?" But I think it all makes us stronger, helps us to live life fuller, to do what we really enjoy, what is meaninful. I was complaining to a friend the other night how I felt guilty at times. She asked why? I said, "Well, some days I get up, dawdle around the house, and then do whatever I want." We both laughed. She thought it sounded darn good to her, especially since she works full time away from her home.

So....
ONE YEAR DOWN

50 MORE TO GO (give or take a few)



LIFE IS GOOD

Debbie... aka the cancer warrior ... AND SURVIVOR!!!

LIVESTRONG
• I AM STRONG • I AM HEALTHY • I AM LOVED •

Tuesday, September 18, 2012

VOTE TODAY - Keep A Breast Foundation

I had the sweetest comment on my blog the other day from a young girl with a history of breast cancer in her family. She has gotten involved with the The Keep A Breast Foundation organization to help focus her frustration with this horrible disease in a positive way. This youth-focused nonprofit organization educates about cancer prevention, early detection, and of cancer-causing toxins in the environment. She asked if I could help get the word out for them, and I'm happy to do so right here.

The Keep A Breast Foundation has been nominated for a 2012 Chase Community Giving Grant and the chance at the top prize of a $250k grant! The recipient of the grant is determined by votes and winning would mean that they could continue their awesome work in education. 

Vote for Keep A Breast to be awarded a $250K grant from Chase Community Giving: http://bit.ly/TrduBz

To celebrate they made a parody music video of Taylor Swift's "We Are Never Getting Back Together" to show everyone just how honored and excited they truly are. One of their goals was to shoot the video without any cuts, just like the original and shoot it in one take and they successfully did it after 10 takes! 


We hope everyone enjoys the video and takes with them the important message that breast cancer (and any cancer in general) does affect young people and does not discriminate. We want young people to be conscious about their own health, and to be their own health advocates, to check themselves every month and never ever let anyone tell them that they're too young. Like ever. But to win, we'll need you to do more than watch this video!

A bit about Keep a Breast Foundation from their website:
From September 6th - 19th, 2012 we're going to need the help of all our supporters, friends and family to help share, tweet, post, re-blog, e-mail or whatever you do to EVERYONE you know. The more exposure we have, the better the chance at getting the votes we need!

If we are awarded the $500k grant, we'll be able to continue to educate young people about the importance of breast cancer prevention and removing toxins out of their daily life forever. Like forever.

Special thanks to Jana Bocchieri (singer) and Justin Bocchieri (musical production) for donating their time and talent to make this happen.

Official Chase Community Giving page:
http://facebook.com/chasecommunitygiving
http://fb.chasegiving.com

Connect with Keep A Breast!
http://keep-a-breast.org
http://facebook.com/keepabreast
http://twitter.com/keepabreast
http://flickr.com/keepabreast
http://stickam.com/keepabreast
http://foursquare.com/keepabreast
http://keepabreast.tumblr.com

About The Keep A Breast Foundation:
The Keep A Breast Foundation™ is the leading youth-focused, global, nonprofit breast cancer organization. Our mission is to eradicate breast cancer for future generations. We provide support programs for young people impacted by cancer and educate people about prevention, early detection, and cancer-causing toxins in our everyday environment.

The Keep A Breast Foundation™ is headquartered in the United States as a 501 (c) (3) nonprofit. We are supported in fulfilling our mission by international partners Keep A Breast Canada, Keep A Breast Europe, and Keep A Breast Japan.

Monday, September 10, 2012

Cancer Friends

My cancer-friend (now that is a weird thing to say or write, BUT, it's more and more true these days), Jennifer, appears to be right about where I am today. Here is a link to her blog: Tamoxifen Diaries
   
She picked up on my post about the risks of consuming alcohol, for first onset of breast cancer people like us, AND for future recurrence, and blogged about it. We are there together....
  • Challenged by the alcohol consumption around us, mostly wine; and how casual it all is, nearly all the time, and how to avoid it "most" of the time.
  • Eating better; more greens, less meat, less bread, vegies, legumes -- trying to grow more of it and choose only organic and non-GMO.
  • Challenged to drop some weight as stats show heavier women are more at risk (yes, it's the fat thing again coming back to haunt me over and over). But from what I can tell, she was pretty slim and trim until this cancer visited her and played a roll on her body and metabolism.
  • Taking the "five-year-pills" and the side effects it can bring.
  • Looking different; the hair, or lack there-of, or increase in facial hair. Leaving it natural finally, or not!The lopsided boobs; but heck -- they are there, and all mine.  :-)
  • Staying positive and not thinking about "it"; will it get me again later, maybe ten years down the road, maybe tomorrow, hopefully NEVER!
All those challenges we face as we are now "cancer survivors" or "in remission". I like "survivor" better myself. :-)

Then there is the challenge to continue with the blog; or how to continue with the blog. I mean, in reality, life is pretty darn good and those are the things to talk about and focus on now. But do I switch and change blog my format. Do I continue here so all my followers, who have been so interested, and complimentary, and told me how much help I have been to them; so they see that I am doing well and there is life after cancer.

Jennifer and I are definitely on a similar path right now. It is such a challenge at times. Lucky for me to have my first two grandchildren enter my life at the end of the year of my cancer treatment. That definitely has given me a wonderful distraction, especially since I get to spend a day a week with each of them. I can't believe how joyful it is to be with them and see their smiling faces. I had no idea being a Grammie (aka GaGa) could be so absolutely wonderful - the icing on the cake, if there is such a thing. Motherhood and being a wife is wonderful too. Having a career is very rewarding. But BEING A GRAMMIE!!! Oh my!!!

Cutting wine from my diet, which has actually helped me to lose weight has not been too hard. I've not been overly rigid on myself, but save it for special occasions. Some weeks I have a glass or more a couple of times a week, other times I have none. I basically do not drink at home at all! PERIOD!! I will though if we have company, go out to a special event, a wedding, dinner out with friends. But I'm finding I consume much less. I've decided the Farmer's Market we attend with friends is just too frequent, as it will then be a weekly happening. And that has not been hard. I am the DD for sure that night, and that helps out. I do to eat better, eat more greens, less bread, but really -- the wine is the one major change I am good at most of the time. :-)

But WE are here, and trying to be better at what we do, take our daily pill, and enjoy the loved ones in our lives. 

So here are my loved ones:

Alura and Nico, who just turned one in August. 
With 5-6 adorable teeth, he's babbling and walking and getting into everything.




Sarah and Gaige. Gaige is now 10.5 months.
He has two teeth, babbling as well, crawling like mad, and also into everything.


And Grandpa Mark, pictured here with Gaige at the Farmer's Market.




AS YOU CAN SEE -- LIFE IS VERY GOOD

Debbie... aka the cancer warrior ... AND SURVIVOR!!!

LIVESTRONG
• I AM STRONG • I AM HEALTHY • I AM LOVED •

Friday, September 7, 2012

Stand Up To Cancer

Mark and I are watching the special Standup2cancer program for fundraising to find a cure for cancer. Lord knows I could only hope for such a miracle in my lifetime. 

I am presently one of the blessed. It is almost one year since my last treatment of radiation, and thankfully it feels like it has been even longer than that. I have appointmnts coming up in October for followup oncology appointment, blood work, and  bone density scan. All bring back that reminder of the reality of it all. Bring back the fear that maybe they will find "something". Bring back reality.

But during this telethon, there were several very touching stories; some of children, and young adults, with metastasis or high staged cancers. Very sad to watch, but yet uplifting at their strength and fight. And the fight against cancer, to find a cure and erraticate cancer... Forever for all!

Life is short. We will all die of something, some day. So live life to the fullest. Hug your children. Tell them you love them everyday. And if you are blessed with grandchildren, make them a very special part of your lives. Most of all, eat well, exercise, get lots of green leafy vegetables in your diet, keep alcohol to a minimum, keep your stress level low, and enjoy life to the fullest.


LIFE IS GOOD

Debbie... aka the cancer warrior ... AND SURVIVOR!!!

LIVESTRONG
• I AM STRONG • I AM HEALTHY • I AM LOVED •