LIVESTRONG:

What started as IDC (Infiltrating Ductal Carcinoma) in 2011, then turned into CHF (Congestive Heart Failure) in 2013, probably partially caused by chemotherapy along with a genetic pre-disposition. Here we are now in March 2016 and I am newly diagnosed with Stage IV breast cancer in the left breast and liver (LMBC - liver metastasized breast cancer).


So the focus has shifted yet again, BUT... I continue to THANK YOU for your prayers, love & support. I receive them with open & loving arms. My wish is that I will gain strength from you, will provide helpful information and strength to others & will help to strip away the fears we each experience.


I am strong. I am loved. I am healthy. I WILL SURVIVE!

Have you or your loved one had their annual mammogram? PLEASE, don't put it off. Speaking from experience, I highly recommend monthly self exam as well. And if you are now cancer free of breast cancer, do everything you can to insist that your doctors follow up with an occasional PET Scan and labs for tumor markers.

WARNING:
Contents may be uplifting, sad, funny, scary, downright depressing ~ THAT IS CANCER .... at it's best, at its worst.

PLEASE ~ Feel free to share this blog with anyone who is interested to learn about my journey. While I welcome their support, I hope that by sharing this experience freely to the universe I may help to support others by breaking down some of the barriers and fear associated with breast cancer and the treatment.

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Wednesday, July 29, 2015

I'm Walking On Sunshine, Whoa.oh....

HOLY MOLEY... 40%!!!  It is so hard to believe it is possible. Am I dreaming?

That is a 40.2% EF (Ejection Fraction)

Which is up from 15-18%!

On Monday I had my routine followup visit at Stanford Medical Center with my Cardiologist, and well known and respected Stanford heart transplant surgeon, Dr. Michael Fowler. Also scheduled was an Echo cardiogram test of my heart, which had not been performed for nearly 18 months, and which previously reported an EF of 18% both in August 2013 and January 2014, not to mention the Echo with my Santa Rosa Cardiologist, Dr. Sanjay Dhar in July and October 2013 which reflected an EF of about 12-15%.

And all of these previous numbers, as well as other exams of me, my heart, and failing condition, made me a sure candidate for a heart transplant; as hard as those words were and still are to say and type. But, you see, I was not a heart transplant candidate because I was not yet 5 years cancer free. So the LVAD (Left Ventricular Assist Device) procedure was being planned, which is considered a Bridge-To-A-Transplant therapy. Mark, Alura & I even went through the LVAD training in April of 2014. Yes, just that short time ago, a little over a year ago. The funny thing was, that from January to April 2014, I had started to feel oh so much better.

As I look back now, from my diagnosis in June 2013, right at the end of a wonderful trip we had taken to celebrate our 40th anniversary, it really wasn't that long of a time. But the way I felt, and how quickly I declined, from that June until January 2014, was something I hope to never EVER experience again. Not being able to walk up a half flight of stairs, or make the short walk out to our alpacas, or do really anything for that matter other than sit around, with terrible edema, bloating and indigestion, hardly any appetite, unable to sleep without several pillows, gasping for air. Oh my, these memories are almost too much. But it is good to remember and reflect, AND be oh so thankful.

At the time, Dr. Dhar immediately referred me to Dr. Fowler at Stanford. And I know why. He too knew that a heart transplant was my only hope. Thankfully, though, the latest technologies and medications helped me so much, and my very strict regime (on doctors orders), of treating sodium as an allergen and keeping it to a very minimum in my diet. Then there was the recommendation to be as active as my heart would allow. All this, and the horrible indigestion, helped me to drop 40 lbs, and I know that was a huge contributing factor in my improvement as well. Less weight, meant less work for my failing heart.

While all this was going on, I went through test, after test; and several changes and increases in medications. Then there was the Holter Monitor, and the three grueling months with the Zoll Lifevest, which is an external defibrillator -- a cumbersome gadget, worn 24/7 like a back pack, with a huge controller over my shoulder and a long "tail-like" cord attached to the vest which hung down off my back. It was uncomfortable to sleep in, and just depressing to wear. But it had a job to do and I was glad to have it there just in case. Finally, after 3 months of the vest, Insurance approved an ICD (Implantable Cardioverter Defibrillator), which is surgically implanted into the chest wall, just above the left breast, and has two leads (wires) that go into the two chambers of the heart. Mine was implanted on October 25, 2013.

The ICD is not a pacemaker. It is a defibrillator calibrated to shock the heart back to life whenever alerted to do so, based on settings individual to the patient. I later learned that this gadget also took all sorts of readings that the technician and doctor would "interrogate" at each appointment, and read to see all the history captured since the last appointment. An ICD will also pace the heart back into rhythm, should that be necessary, trying to avoid the shock if possible. Fortunately, I have never been shocked. I hear it can feel like a horse kicking you in the chest - YIKES!

The ICD surgery went well, with the exception that I caught a very nasty cold right afterwards, fever and all, and my ICD immediately had to pace my heart and I felt absolutely horrible for quite some time. As a matter of fact, I felt very bad for the next 3+ months. It was not until I saw Dr. Fowler in January 2014, when he made adjustments to all my medications, and then talked very seriously that we prepare for transplant or LVAD. The thought on the LVAD is that it would then move me into the transplant wait list, even with the cancer history; and keep me going until transplant, or possibly even without transplant. These were some pretty scary times. The LVAD training alone was enough to scare me out of my skin; not to mention Mark and Alura, who were there with me for the training in April 2014.

But low and behold, the changes in medication, and possibly some new probiotics I began to take, along with the continued lifestyle changes, all took effect and I began to feel better immediately. I began to walk a bit when I could, sometimes only to the mailbox. But heck, that was a huge accomplishment. I had lost some weight. And, I began to sleep better. So even though we had the LVAD training, we all knew, even Dr. Fowler, that the procedure probably would not take place, at least not right away.

So dial ahead about 15 months, and here we are today. Sorry for the long recount of things, but it just seemed important to tell this story and share with you how instrumental this new EF number is in the scheme of things.

The left ventricle is the heart's main pumping chamber, so ejection fraction is usually measured only in the left ventricle (LV). An LV ejection fraction of 55 percent or higher is considered normal. An LV ejection fraction of 50 percent or lower is considered reduced. Experts vary in their opinion about an ejection fraction between 50 and 55 percent, and some would consider this a "borderline" range.
Keep in mind that ejection fraction is just one measure of heart function. Even with a normal ejection fraction, overall heart function may not be normal.

So you can imagine that my previous EF of 18% was quite low and very serious. But an increase to 40% is HUGE, and makes my heart sing. AND, so much more closer to the normal range.

So I'll take it, and be very grateful for all that I have -- a loving husband and best friend, amazing daughters and SIL's along with the three most adorable grandchildren in the world. And oh, did I mention the most supportive sisters and brothers, and all their families. And then there are amazing cousins and friends galore. You are all so wonderful and have supported us both during the last five years of cancer and heart disease. We love you all and thank you for standing with us through thick and thin.

 Mark and I doing the Happy Dance at Stanford Medical Center.


 Celebrating Madeleine's 1st birthday this past weekend. 
There will be many more for me to share in!




Life is Good...

Debbie... aka the cancer SURVIVOR, 
AND now the Cardiomyopathy warrior!!!
• I AM STRONG • I AM HEALTHY • I AM LOVED •

THANKS for visiting! I look forward to your comments.



Sunday, July 26, 2015

It's That Time Again

Relay for Life Sonoma time, that is! 7/31 - 8/1/15

The event is changed up a bit this year. There will be a "soft opening" Friday night with movie & smores. Sat, August 1,  is the opening ceremony at 9 am, then survivor lap. Relay for Life will then go all day Saturday from 9am-10pm. Luminaries begin at 8pm.

I'll be going to the Survivor Dinner on July 30th with my group of "cancer girls". Wish I could say that means my girlfriends with the Cancer Moon Sign, but no it means "girlfriends" who have, or have had, cancer -- and the group has grown -- DAMNIT! (Yes, you can swear freely when it comes to cancer).

The Relay is always an uplifting, and somewhat tearful, event. But there is lots of fun, food, and camaraderie. And the whole of Sonoma, practically, comes out. Come out and walk with me. I plan to do the survivor walk with our cancer community and several cancer friends, which should be around 9:30am or so; then walk with my family as caregivers in the caregiver lap, which is next. Then anyone can jump in and walk to their hearts content.

Come on out! It's a great day with a great cause. And if you do, or even if you don't, go to the Relay for Life website and make a donation. I don't have a team, but you can donate in my name, or anyone else's name. Thanks so very much!

While on the subject, won't you please Vote today, vote tomorrow, VOTE EVERYDAY - My friend, Dr. Kate Farrell, and her partners at Paradigm Shift Therapeutics, have a novel idea -- affordable breast cancer therapy for one and all. Kate is quite an amazing woman and has entered a contest to win a commercial for their company at the Superbowl 2016.  

The contest is for small business owners and the winner is the business that gets the most votes.  Please forward this to friends, family, coworkers, people you know, people you don't know, anyone with a computer for that matter!  This will help support their mission. You do not have to register or sign up for anything - just click the link "VOTE" and pass it on.  

As Kate says, and I agree, "Thank you from the bottom of my heart"!

Paradigm Shift Therapeutics, LLC could win a commercial that millions of people will see. And you can vote every 24 hours. I already did, and will again, and again, and again. Won't you too?


This business is all about affordable care for cancer treatment!
 



Vote for Paradigm Shift Therapeutics, LLC



Life is Good...

Debbie... aka the cancer SURVIVOR, 
AND now the Cardiomyopathy warrior!!!
• I AM STRONG • I AM HEALTHY • I AM LOVED •

THANKS for visiting! I look forward to your comments.