I did, and I'm glad I did.
AND now the Cardiomyopathy warrior!!!
• I AM STRONG • I AM HEALTHY • I AM LOVED •
What started as IDC (Infiltrating Ductal Carcinoma) in 2011, then turned into CHF (Congestive Heart Failure) in 2013, probably partially caused by chemotherapy along with a genetic pre-disposition. Here we are now in March 2016 and I am newly diagnosed with Stage IV breast cancer in the left breast and liver (LMBC - liver metastasized breast cancer).
So the focus has shifted yet again, BUT... I continue to THANK YOU for your prayers, love & support. I receive them with open & loving arms. My wish is that I will gain strength from you, will provide helpful information and strength to others & will help to strip away the fears we each experience.
About this StudyHow can we better manage the symptoms after breast cancer treatment together? Sage Bionetworks, a 501(c)(3) nonprofit research organization, invites you to volunteer in a new approach to monitor health in women using mobile apps. Share the Journey: Mind, Body and Wellness after breast cancer is a clinical study that aims to understand the symptoms after breast cancer treatment, why these symptoms vary over time, and what can be done to improve them.
New technologies allow people to record and track their health and symptoms in real time. Share the Journey will use surveys and phone sensor data to collect and track five common symptoms that can persist after breast cancer treatment: fatigue, mood and cognitive changes, sleep disturbances, and reduction in exercise. Some participants will be invited to keep a health diary. The app will allow you to track these symptoms and others of your choosing, review trends, and provide your insights to researchers and the breast cancer community about how your symptoms might change day to day. This study is unique in that it allows participants to step up as equal partners in both the surveillance and management of their symptoms as well as in the research process.
How this Study Works
The Share the Journey app will ask you to answer questions about yourself, your medical history, and current health. The app may ask you to perform specific tasks while using your mobile phone, such as to provide a journal about your week with symptoms. To better understand the way that your symptoms are affecting your life, we will ask you permission to collect data from your phone itself, such as how much you move in one day. Providing this information is optional.
Our goals are to understand the causes of the symptom variations after breast cancer treatment; to learn how mobile devices and sensors can help us to these symptoms and their progression; and to ultimately improve the quality of life for people after breast cancer treatment.If you, or someone you know, is dealing with or has dealt with breast cancer, suggest they check this out. So far, I think it is a great tool.