I saw Nurse Practitioner Mortensen again today and our appointment went well. The FoundationOne test results are in and I am hopeful. I learned that...
For now, the exciting news (I think) is that there were three variants (genomic alterations) found in my tumor type. Two have no FDA approved targeted therapies at this time, but one does!!! So there are some clinical trials for the KRAS Genomic Alteration (see below). And although they are all out of state, my understanding is that we can still do the same thing here at my clinic. I will be meeting with my oncologist next week to discuss in further detail and make a plan of attack. My guess is that they will want to continue with a few more chemo treatments of Abraxane and Carboplatin, to give this cocktail the time it needs to do its job in kicking the cancer cells butt, and then we go from there. Again, one day at a time...
Did I tell you I am shrinking. Heavenly Father above, how can that be? On Monday at the genetic counseling appointment, they weighed me and checked my height. Mind you, I've always been 5'4". But then my mother and I would quibble over that fact as she claimed she was 5'4" and I was most definitely not quite as tall as her. Really, Mother??? I've recently resorted to being 5'3.5" over the last year or so as it keeps coming up there. But yesterday, SADLY, she said I was 5'2.5" NOOOOOOOOO. Well I guess it is a good distraction. And the report rounded up to 5'3". It's all so trivial, isn't it. I guess if I can be bald in a month, I can be a bit shorter too.
I digress.... I am a bit anemic for sure. My hemoglobin was 7.0 a few weeks back right before the blood transfusion, then 9.2 right after the new blood was infused. So today it is 8.9. They predict I will need another blood transfusion in a week or two. I asked about a shot or something else that might be available. There is something available, but in clinical trials it was known to cause blood clots and showed some cancer progression. So I will stick with transfusions.
We also talked about me needing IV diuretics with infusions and transfusions, per my cardiologist, due to my Congestive Heart Failure. I presented the NP with my prescription from said cardiologist and so they added in 10 mg lasix today based on the amount of fluids in my total infusion. So all good there.
Did I tell you that Sarah ventured out to get us something new for lunch. There is a Vietnamese Noodle place very nearby, and when I asked my Oncology Nurse, Tami, about it, she loves the place. So we tried some yummy stuff, Bahn Mi sandwich, shrimp with noodles, and a fresh veggy wrap. Very good.
|My reading for this excursion. I did not open Ply yet, iPad was barely cracked, but I studied the FoundationOne report and texted details to family members wanting to know, and browsed the MBC booklet. All in good time.|
in your thoughts & prayers.
• I AM STRONG • I AM HEALTHY • I AM LOVED •